The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in North Charleston, SC

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 59 doctor with experience in Neurofibromatosis Type 1 (NF1) near North Charleston, SC. Of these, 8 are Experienced.

Location
LocationClose
59 providers found
    Cardiology
    Cardiology

    Office

    8992 University Blvd Ste 200, 
    North Charleston, SC 
     (4.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    David Gregg is a Cardiologist practicing medicine in North Charleston, South Carolina. Dr. Gregg is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Familial Ventricular Tachycardia, Arrhythmias, Angina, Cardiac Ablation, and Heart Valve Repair.

    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    General Surgery

    MUSC Children's Health Neurosurgery At Summey Medical Pavilion

    2250 Mall Drive, 2nd Floor, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English, Farsi
    Accepting New Patients
    Offers Telehealth

    Dr. Ramin Eskandari grew up in Ann Arbor, Michigan and received his bachelors in science in biology/neurobiology at the University of Michigan. After college Dr. Eskandari lived in Switzerland while working at a sports camp for kids. This was followed but two more years of international travel while receiving his Master's in Medical Science. He participated in research projects in artificial vision and hydrocephalus, fueling his future research interests in pediatric hydrocephalus and brain injury.Ramin Eskandari is an associate professor of neurosurgery and chief of pediatric neurosurgery at the Medical University of South Carolina. He holds adjunct positions in the Departments of Pediatrics (Child Neurology), Surgery (Plastic Surgery) and Immunology/Microbiology (Director of Pediatric Brain Injury and Hydrocephalus Research). His clinical expertise focuses on the surgical management of children with disorders of the brain and spine, minimally invasive methods for treating pediatric neurosurgical disorders, and endoscopic treatment of multiple disorders including complex hydrocephalus and brain tumors. Dr. Eskandari has always had a very fervent desire to maintain basic science research alongside clinical therapeutics. He opened the first pediatric hydrocephalus and brain jury research laboratory in South Carolina in 2014 and has maintained active research through internal, state level and philanthropic grant funding. Currently, his laboratory has invented a novel cell culture model of elevated intracranial pressure and has collaborated on a novel medical therapeutic to prevent progressive brain injury and hydrocephalus in neonates with brain hemorrhage. Dr. Eskandari is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Syringomyelia, Chiari Malformation, Posterior Fossa Decompression, and Thrombectomy. Dr. Eskandari is currently accepting new patients.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Pediatric Neurology

    MUSC Children's Health Neurology At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    23+ years
    Languages Spoken:
    English, Portuguese
    Accepting New Patients
    Offers Telehealth

    Mariana Szuchmacher, MD, specializes in Pediatric Neurology and is located in North Charleston, SC. Dr. Szuchmacher is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Szuchmacher is currently accepting new patients.

    Learn about our expert tiers
    Pediatric Neurology
    Pediatric Neurology

    MUSC Children's Health Neurology At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    49+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Thomas K. Koch, division chief for pediatric neurology at MUSC Children's Hospital, is a pediatric neurologist. His clinical interests include pediatric headache and migraine headache, tics and Tourette syndrome, and pediatric epilepsy. Dr. Koch obtained his medical degree from the University of California, San Diego and completed a residency in pediatric neurology at the University of California, San Francisco, which was followed by two years of neurochemistry research at that institution. Dr. Koch has held clinical faculty positions at the University of California, San Francisco, the University of Maryland in Baltimore, and Oregon Health and Sciences University. In August 2014, he was appointed to his position at MUSC. Dr. Koch is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Concussion, Migraine, Seizures, and GAPO Syndrome. Dr. Koch is currently accepting new patients.

    Pediatric Cardiology
    Pediatric Cardiology

    MUSC Children's Health Cardiology At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Nicole Cain graduated from Marshall University in 2001 and completed medical school at the Joan C. Edwards School of Medicine at Marshall University in 2005. She went on to complete both her pediatric residency and pediatric cardiology fellowship training at the Children's Hospital of Pittsburgh of UPMC. She pursued additional training in pediatric electrophysiology at the Medical University of South Carolina and joined the MUSC faculty as a pediatric electrophysiologist in 2011. Dr. Cain's academic interests include cardiac arrhythmias such as supraventricular tachycardia (SVT) and Wolff-Parkinson-White Syndrome (WPW). As the director of pediatric electrophysiology, Dr. Cain performs electrophysiology studies and ablation procedures in patients from all over SC and implants pacemakers and defibrillators in teenage and adult patients. Dr. Cain's research interests include arrhythmias in the single ventricle population and in patients with congenital heart disease. She is an active research participant in multi-center research studies involving arrhythmias and EKG screening in the Pediatric Heart Network (PHN) and in the Pediatric and Adult Congenital EP Society (PACES). Dr. Cain is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Block, Tetralogy of Fallot, Transposition of the Great Arteries, and Tricuspid Atresia. Dr. Cain is currently accepting new patients.

    General Surgery
    General Surgery

    MUSC Children's Health Neurosurgery At Summey Medical Pavilion

    2250 Mall Drive, 2nd Floor, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Libby Infinger received her undergraduate degree from the College of William and Mary in Williamsburg, Virginia and her Master's in Public Health from the Ohio State University in Columbus, Ohio. She went onto receive her medical degree from Northeast Ohio Medical University in Rootstown, Ohio, and completed her neurosurgery residency at the Medical University of South Carolina in 2014. Dr. Infinger returned to MUSC after completing her fellowship in pediatric neurosurgery at the Cincinnati Children's Hospital Medical Center in Cincinnati, Ohio. Her clinical interests include craniosynostosis and craniofacial surgery, spinal dysraphism, Chiari malformation, spasticity, and neuro-oncology. She is involved in numerous professional organizations including the American Association of Neurological Surgeons, the Congress of Neurological Surgeons, and Women in Neurosurgery. Dr. Infinger is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Chiari Malformation, Chiari Malformation Type 2, Bulging Fontanelles, Posterior Fossa Decompression, and Thrombectomy. Dr. Infinger is currently accepting new patients.

    Pediatric Neurology
    Pediatric Neurology

    MUSC Children's Health Neurology At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Alison Rookard, PNP, specializes in Pediatric Neurology and is located in North Charleston, SC. Dr. Rookard is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Rookard is currently accepting new patients.

    General Surgery
    General Surgery

    MUSC Children's Health Neurosurgery At Summey Medical Pavilion

    2250 Mall Drive, 2nd Floor, 
    North Charleston, SC 
     (0.5 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Marshall, PA-C, specializes in Pediatric Neurosurgery and is located in North Charleston, SC. Dr. Marshall is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1). Dr. Marshall is currently accepting new patients.

    Medical Genetics
    Medical Genetics

    Greenwood Genetic Center– Charleston

    3520 West Montague Avenue, 
    Charleston, SC 
     (5.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Michael Lyons is a Medical Genetics provider practicing medicine in Charleston, South Carolina. Dr. Lyons is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Delayed Growth, Microcephaly, Autism Spectrum Disorder, and Duane-Radial Ray Syndrome. Dr. Lyons is currently accepting new patients.

    University Medical Associates Of The Medical University Of South Carol

    2060 Sam Rittenberg Blvd, 
    Charleston, SC 
     (5.4 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English

    Nicholas Shaheen, MD, specializes in Radiology. Dr. Shaheen is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Muscle Invasive Bladder Cancer, Non-Muscle Invasive Bladder Cancer, Bladder Cancer, Urothelial Cancer, and Small Bowel Resection.

    University Medical Associates Of The Medical University Of South Carol

    171 Ashley Ave, 
    Charleston, SC 
     (7.1 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English

    Sandra Rutigliano, MD, specializes in Radiology. Dr. Rutigliano is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Tenosynovitis, Calcium Pyrophosphate Arthritis, Caffey Disease, and Bronchogenic Cyst.

    MUSC Health - Adult Emergency Department - University Hospital

    96 Jonathan Lucas St, 96 Jonathan Lucas St, 
    Charleston, SC 
     (7.2 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Michael Antonucci, MD, specializes in Radiology, and Brain & Spine Cancer and is located in Charleston, SC. Dr. Antonucci is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Stroke, Cerebral Arteriovenous Malformation, Meningioma, and Focal or Multifocal Malformations in Neuronal Migration.

    Pediatric Radiology | Radiology
    Pediatric Radiology | Radiology

    MUSC Health University Medical Center Extension

    165 Ashley Avenue, 165 Ashley Avenue, 
    Charleston, SC 
     (7.2 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Meryle J. Eklund, M.D. is an associate professor of radiology at the Medical University of South Carolina in Charleston, South Carolina. Dr. Eklund received her medical degree from Tulane University School of Medicine in 2008 and completed a transitional year followed by residency in diagnostic radiology at Emory University in Atlanta, Georgia. She completed a fellowship in pediatric radiology at Children's Healthcare of Atlanta &- Egleston campus (an affiliate of Emory University). She joined the Department of Radiology and Radiological Sciences at MUSC as a faculty member in 2014.Dr. Eklund is certified by the American Board of Radiology and holds a certificate of added qualification in Pediatric Radiology. She is a reviewer for RadioGraphics. Dr. Eklund is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Renal Cell Carcinoma (RCC) and Neurofibromatosis Type 1 (NF1). Dr. Eklund is currently accepting new patients.

    MUSC Children's Health Primary Care At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Kristen Lancaster is a Pediatrics provider practicing medicine in North Charleston, South Carolina. Dr. Lancaster is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Autosomal Cleft Palate, Chromosome 6q Deletion, Chromosome 21q Deletion, and Y Chromosome Infertility.

    Pediatric Neurology
    Pediatric Neurology

    MUSC Children's Health Primary Care At Summey Medical Pavilion

    2250 Mall Dr, 
    North Charleston, SC 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dalila Lewis is a Pediatric Neurologist practicing medicine in North Charleston, South Carolina. Dr. Lewis is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Memory Loss.

    Pediatric Radiology
    Pediatric Radiology

    MUSC University Hospital

    171 Ashley Ave, 
    Charleston, SC 
     (7.1 miles away)
    Languages Spoken:
    English

    Richard Jones is a Pediatric Radiologist practicing medicine in Charleston, South Carolina. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Bronchogenic Cyst, Caffey Disease, Scoliosis, and Tracheobronchopathia Osteoplastica.

    Pediatric Radiology
    Pediatric Radiology

    MUSC University Hospital

    171 Ashley Ave, 
    Charleston, SC 
     (7.1 miles away)
    Languages Spoken:
    English

    Jeanne Hill is a Pediatric Radiologist practicing medicine in Charleston, South Carolina. Dr. Hill is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Bronchogenic Cyst, Tracheobronchopathia Osteoplastica, Caffey Disease, and Simpson-Golabi-Behmel Syndrome.

    Neuroradiology
    Neuroradiology

    MUSC University Hospital

    171 Ashley Ave, 
    Charleston, SC 
     (7.1 miles away)
    Languages Spoken:
    English

    Seth Stalcup is a Neuroradiologist practicing medicine in Charleston, South Carolina. Dr. Stalcup is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Stroke, Cerebral Arteriovenous Malformation, CAPOS Syndrome, and Subarachnoid Hemorrhage.

    MUSC Health Neurosurgery At West Ashley Medical Pavilion

    2060 Sam Rittenberg Boulevard, 
    Charleston, SC 
     (5.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Patricia Mathias, PA-C, MPAS, specializes in Neurosurgery, and Spine Surgery and is located in Charleston, SC. Dr. Mathias is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Muscle Spasms, Rathke Cleft Cyst, and Neurofibromatosis Type 1 (NF1).

    Otolaryngology | Radiology
    Otolaryngology | Radiology

    University Medical Associates Of The Medical University Of South Carol

    171 Ashley Ave, 
    Charleston, SC 
     (7.1 miles away)
    Experience:
    30+ years
    Languages Spoken:
    English, Italian
    Accepting New Patients

    Maria Vittoria Spampinato, M.D. is an assistant professor of radiology at the Medical University of South Carolina. She graduated from medical school at the Universita Cattolica del Sacro Cuore, Rome, Italy, where she also completed a diagnostic radiology residency. She was a post-doctoral fellow in the intramural program at the National Institute for Neurological Diseases and Stroke, NIH, Bethesda, Maryland. She completed a neuroradiology fellowship at the University of North Carolina, Chapel Hill, North Carolina. She joined the radiology faculty at the Medical University of South Carolina in November 2005.Dr. Spampinato's primary research interests are functional magnetic resonance imaging, brain tumors, and head and neck cancer. She has presented her research work at major national radiological meetings and has published several peer-reviewed articles and review articles. Dr. Spampinato is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Stroke, Cerebral Arteriovenous Malformation, Pediatric Low-Grade Glioma (pLGG), and Subarachnoid Hemorrhage. Dr. Spampinato is currently accepting new patients.

    Showing 1-20 of 59

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near North Charleston, SC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near North Charleston, SC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near North Charleston, SC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near North Charleston, SC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near North Charleston, SC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near North Charleston, SC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near North Charleston, SC?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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